Living with HF

LEARNING TO LIVE WITH
HEART FAILURE AND MAINTAINING
A HIGH STANDARD OF LIVING.

Keep a close eye on symptoms

Strategies for adjusting to life with HF for you and your loved one

Heart failure (HF) comes in degrees of severity and therefore the symptoms can impact people differently. Some people will barely notice any difference to their lives, some will have to make more adjustments to their lifestyle in order to maintain a high standard of living. This can also change for people over time, as they get older or as other factors may come into play. That’s why we advise that all those involved keep a close eye on their symptoms and make sure to track them. For that reason, we have created a useful symptoms tracker to help with the process. If any symptoms change, it is important they consult with a doctor as soon as possible.

 

Here’s what they should keep an eye out for, and make note of any changes1,2:

Shortness of breath

Swelling – notably in the ankles, feet or lower legs

Tiredness or fatigue

Heart rate – especially if they feel their heart is racing or throbbing

Lack of appetite and nausea
 

Persistent coughing or wheezing
 

                                                                                                                                                                                                                                                                                                         

Disorientation or confusion – HF means that blood may not be getting pumped around their body properly. This can cause too little oxygen or too much sodium which can affect their mood.

                                                                                                                                                                                                                                                                                                         

Tracking other factors that affect their day-to-day life such as sleep, weight and general mood/anxiety is a good habit to follow for any condition, and should always be registered with their doctor3.

                                                                                                                                                                                                                     

Keep a close eye on your symptoms

Strategies for adjusting to life with HF

Heart failure (HF) comes in varying degrees of severity and the symptoms may impact people differently. You may barely notice any difference to your life, or you may have to make more adjustments to your lifestyle in order to maintain a high standard of living. This can also change over time, as you get older or as other factors may come into play. That’s why we advise you to keep a close eye on your symptoms and be sure to track them. For that reason, we have created a useful symptoms tracker to help you with the process. If any of your symptoms change it is important you consult your doctor as soon as possible. 

Here’s what you should keep an eye out for, and make note of any changes1,2:

Shortness of breath

Swelling – notably in the ankles, feet or lower legs

Tiredness or fatigue

Heart rate – especially if you feel your heart is racing or throbbing

Lack of appetite and nausea
 

Persistent coughing or wheezing
 

Disorientation or confusion – HF means that blood may not be getting pumped around your body properly. This can cause too little oxygen or too much sodium which can affect your mood.

Tracking other factors that affect your day-to-day life such as sleep, weight and general mood/anxiety is a good habit to follow for any condition, and should always be registered with your doctor3.

                                                                                                                                                                                                                     

Download our symptom tracker for an easy way to keep on top of your symptoms.

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Maintaining a strong support network

Keeping an eye on your mental health

It is important to keep a close and strong support network around you when living with HF. For some people, the change in lifestyle and usual ways of going about day to day activities can have a large impact on their mental health. It is perfectly natural to feel down or struggle with your condition. However, it is important to try and maintain a positive mental attitude and not let your disease define your lifestyle. Make sure you have someone close, a friend or loved one, that you can talk to about your condition. If your condition is impacting your mental health heavily, you could consider seeing a therapist.

Another consideration would be finding and joining a support group for HF in your area. These groups can be a great source of strength, aid and encouragement. Hearing from people in the same situation as you can give you confidence, and with time, may offer you the chance to help and inspire others too. Ask your doctor or local health service for any information on support groups in your area.

                                                                                                                                                                                                                     


Continuing to work

For most people, unless their job is particularly physically demanding, there should be little reason to stop working5. In fact, continuing to work can boost your mood and morale overall while reducing stress around threats to your financial stability. Talk openly to your employer and HR representative about finding a solution that works best. In some forms of employment, it may mean a shift in your usual tasks, or perhaps cutting down the amount of days or time you work each day, where possible.

Travelling

Unless you have a very severe case of HF, there should be little to no impact on your ability to travel; however, always be sure to check in with your doctor first and confirm it with them and only ever travel if you feel physically well and able5.

If flying, always first inform the airline of your condition. Depending on the severity of your disease you may need assistance getting around the airport, or from the gate to the aircraft. On long haul flights it is important to move about in order to reduce the risk of blood clots, ask your doctor for information on what small exercises would suit you best. You may also consider wearing compression socks5.

It is also a good practice/habit to take extra medication and keep it with you, should your baggage be lost, stolen or any of your items misplaced. Keep in mind that most of your heart failure medication will be prescription based and you may struggle to purchase any more in your country of destination without the prescription of a local doctor5.

 

Are you concerned about how to manage heart failure during the COVID-19 outbreak? Visit our dedicated COVID-19 page for more information.

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References

  1. NHS. Symptoms of heart failure. Available online at: https://www.nhs.uk/conditions/heart-failure/symptoms/. Last accessed August 25 2020.
  2. Mayo Clinic. Symptoms of Heart Failure. Available online at: https://www.mayoclinic.org/diseases-conditions/heart-failure/symptoms-causes/syc-20373142. Last accessed August 25 2020.
  3. NCBI. Routine self-tracking of health. Available online at: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5977566/. Last accessed 16 September 2020.
  4. Healthline. Tips for caring for someone with heart failure. Available from: https://www.healthline.com/health/heart-failure/caregiving-tips. Last accessed 16 September 2020.
  5. NHS. Living with heart failure. Available from: https://www.nhs.uk/conditions/heart-failure/living-with/. Last accessed 16 September 2020.