Getting a diagnosis

COMING TO TERMS WITH
A DIAGNOSIS AND MOVING
FORWARD WITH A PLAN.

Coming to terms with your diagnosis

The news of any serious diagnosis will always be tough to take at first. It may take time to initially accept. It’s important to remember, however, that you are not alone. With the right support network, changes to your lifestyle and paying close attention to your doctor and the management plan they outline, you can still go on to live a full and happy life.

Can it be treated?

Chronic heart failure is a long-term condition for which there is no cure. But setting and adhering to a good management plan can keep the symptoms under control and provide a high standard of living for many years1,2

Treatment options

Main types of medical approaches include:

Medication – there are several different medications your doctor may prescribe for you, depending on your symptoms. Some include1,3:

ACE inhibitors & Angiotensin receptor blockers (ARB) – lower blood pressure and prevent damage to heart and kidneys

Beta blockers – to slow your heart rate and reduce blood pressure

    

Diuretics – to help reduce fluid retention

Aldosterone antagonists – potassium-sparing diuretics, mainly for those with severe systolic heart failure

    

Digoxin – increases the strength of your heart muscle contractions

Angiotensin receptor blockers (ARB) – lower blood pressure and prevent damage to heart and kidneys.

    

Angiotensin Receptor-Neprilysin Inhibitors (ARNI) – reduce blood pressure and improve fluid status in the body

Mineralocorticoid Receptor Antagonists (MRA) - decrease sodium reabsorption and increase water excretion

    

     Device implants that control heart rhythm – Several devices can be implanted to help heart function. They include1,4:

CRT (biventricular pacing) – a sort of pacemaker that sends electrical impulses to both of the heart’s lower chambers to help them pump more efficiently.

ICDs – like a pacemaker it monitors heart rhythm and tries to speed or reduce the heartbeat if becoming too fast or slow.

    

VADs – ventricular assist devices; a mechanical pump that helps your heart pump blood from the ventricles to the rest of your body.

 

Tips for living with HF

Like any long-term medical condition, living with heart failure means consistently monitoring your health and taking care of yourself. This involves not only sticking to the management plan outlined by your doctor, but also keeping active and controlling your diet5. Heart failure, when well managed, doesn’t have to ruin your social or personal life. 

Some General Tips to Keep in Mind

Build a strong support network

                                                                                                                                                                                                                                                                                                         

Keep a close eye on your symptoms

                                                                                                                                                                                                                                                                                                         

Report any problems you experience to your doctor straight away

                                                                                                                                                                                                                                                                                                         

Try to keep doing the things you enjoy (hobbies, exercise, etc.)

                                                                                                                                                                                                                                                                                                         

 

Talk about your concerns openly with friends and family

                                                                                                                                                                                                                                                                                                         

Take a look at our Living with HF page for more information on heart failure management.

Learn to live with HF

 

Maintaining a healthy lifestyle

Lifestyle and advice tips for HF

Making some simple lifestyle changes and better, healthier choices is important in managing HF6,7. The key is to make small changes to your lifestyle and your approach to healthier eating and the exercise to ensure your heart is functioning as well as it can8.

Any changes to your diet or exercise regime should be made under the guidance of your doctor.

Keeping Fit

It is important to maintain a good level of physical activity, for your body and mind9-11. As your muscles are also affected by how blood is pumped around the body you may experience some cramping and fatigue at first. With that in mind, it’s important to build your exercise regime gradually7.

Here are some useful tips to follow:

Try to maintain a regular frequency of exercising. Scheduling exercise at the same time every day can help make it a regular part of your life. But don’t over strain yourself. This is most certainly a marathon, not a sprint. Start slow and steady and build from there7,8.

Aerobic exercise, such as walking, combined with some light strength training is usually best11.

Depending on your levels of fitness starting out, you should build up in small increments until you can comfortably work out from 30-40 minutes, but your doctor can help you define your routine9.

Things to avoid/be conscious of7:
       • Any sort of high-intensity activities.
       • Reduce activity when tired.
       • Make sure you take adequate rest periods.

Eating Well

Keeping your heart working well also means paying close attention to what you’re eating. A good diet can lower cholesterol, sodium levels and reduce your weight, which takes pressure off your heart12.

Don’t try crash-dieting or fads, balance is key. Try to eat12:
       • Five portions of fruit and vegetables a day.
       • Wholegrain bread, rice and pasta.
       • A small number of dairy products.
       • Protein rich foods like eggs, fish, meat and beans – in moderation.
       • Very little high-fat or sugary foods.
       • Sodium intake should be discussed and managed with your treating physician. Excess sodium is best avoided where possible and only taken very minimally. Sodium can raise blood pressure and have negative effects on the heart.

Alcohol should also be limited. Talk to your doctor about alcohol consumption guidelines and stick to them12.

 

Coming to terms with a heart failure diagnosis is not easy, but you’re not alone. Listen to others for inspiration on how they’ve learned to manage and maintain a high standard of living with HF.

Hear their stories

References

  1. NHS. Heart failure treatment. Available at: https://www.nhs.uk/conditions/heart-failure/treatment/. Accessed 2 September 2020.
  2. American Heart Association. Treatment Options for Heart Failure. Available from: https://www.heart.org/en/health-topics/heart-failure/treatment-options-for-heart-failure. Accessed 2 September 2020.
  3. American Heart Association. Medications Used to Treat Heart Failure. Available from: https://www.heart.org/en/health-topics/heart-failure/treatment-options-for-heart-failure/medications-used-to-treat-heart-failure. Accessed 3 September 2020.
  4. American Heart Association. Devices and Surgical Procedures to Treat Heart Failure. Available from: https://www.heart.org/en/health-topics/heart-failure/treatment-options-for-heart-failure/devices-and-surgical-procedures-to-treat-heart-failure. Last accessed 2 September 2020.
  5. American Heart Association. Living with Heart Failure and Managing Advanced HF. Available from: https://www.heart.org/en/health-topics/heart-failure/living-with-heart-failure-and-managing-advanced-hf. Last accessed: 2 September 2020.
  6. NHS. Living with heart failure. Available from: https://www.nhs.uk/conditions/heart-failure/living-with/. Last accessed 16 September 2020.
  7. BHF. Living with heart failure. Available from: https://www.bhf.org.uk/informationsupport/support/practical-support/living-with-heart-failure. Last accessed 16 September 2020.
  8. American Heart Association. Lifestyle Changes for Heart Failure. Available from: https://www.heart.org/en/health-topics/heart-failure/treatment-options-for-heart-failure/lifestyle-changes-for-heart-failure. Last accessed 16 September 2020.
  9. ESC. Exercise training as therapy for chronic heart failure. Available from: https://www.escardio.org/Journals/E-Journal-of-Cardiology-Practice/Volume-14/Exercise-training-as-therapy-for-chronic-heart-failure. Last accessed 16 September 2020.
  10. American Heart Association. Why is physical activity so important. Available from: https://www.heart.org/en/healthy-living/fitness/fitness-basics/why-is-physical-activity-so-important-for-health-and-wellbeing. Last accessed 16 September 2020.
  11. Hopkins Medicine. 7 Heart Benefits of Exercise. Available online at: https://www.hopkinsmedicine.org/health/wellness-and-prevention/7-heart-benefits-of-exercise. Last accessed 16 September 2020.
  12. BHF. Healthy eating. Available from: https://www.bhf.org.uk/informationsupport/support/healthy-living/healthy-eating. Last accessed 16 September 2020.
  13. Healthline. Tips for caring for someone with heart failure. Available from: https://www.healthline.com/health/heart-failure/caregiving-tips. Last accessed 16 September 2020.